Karen H. Groff

LGS Foundation, Inc. is a nonprofit organization dedicated to supporting individuals and families affected by Lennox-Gastaut Syndrome (LGS), a rare, severe, and lifelong epilepsy disorder characterized by multiple seizure types, developmental delays, and intellectual disability. The private company is based in San Diego, CA. The foundation serves as a comprehensive resource hub offering information on LGS causes, symptoms, diagnosis, and a range of treatment options including FDA-approved medications, epilepsy surgery, neuromodulation devices, dietary therapies, and supportive care. It provides family support through educational materials, patient navigators, caregiver and sibling support, and assistance programs, and facilitates connections to healthcare professionals and specialized care centers. The foundation engages the community through fundraising events, volunteer opportunities, advocacy programs, and conferences, and advances research by funding grants and maintaining a patient database to improve understanding and treatment of LGS. The company was founded in 2008 by Christina SanInocencio.