Florence Mannes
Directeur/Membre du Conseil chez The Barth Syndrome Foundation, Inc.
Profil
Florence Mannes currently works as a Director for The Barth Syndrome Foundation, Inc.
Postes actifs de Florence Mannes
| Sociétés | Poste | Début |
|---|---|---|
The Barth Syndrome Foundation, Inc.
 The Barth Syndrome Foundation, Inc. Miscellaneous Commercial ServicesCommercial Services The Barth Syndrome Foundation, Inc. is a non-profit organization that focuses on Barth Syndrome, an ultra-rare genetic condition that primarily affects males. The private company is based in Larchmont, NY and was founded in 2000 by Katherine R. McCurdy. The condition is characterized by cardiac abnormalities, exercise intolerance, muscle weakness, severe fatigue, recurrent infections, and delayed growth. The foundation aims to raise awareness about the condition and fund research to find a cure. There are currently no FDA- or EMA-approved therapies for patients with Barth Syndrome. | Directeur/Membre du Conseil | - |
Expériences
Fonctions occupées
Relations
Relations au 1er degré
Entreprises liées au 1er degré
Homme
Femme
Administrateurs
Exécutifs
Sociétés liées
| Entreprise privées | 1 |
|---|---|
The Barth Syndrome Foundation, Inc.
The Barth Syndrome Foundation, Inc. Miscellaneous Commercial ServicesCommercial Services The Barth Syndrome Foundation, Inc. is a non-profit organization that focuses on Barth Syndrome, an ultra-rare genetic condition that primarily affects males. The private company is based in Larchmont, NY and was founded in 2000 by Katherine R. McCurdy. The condition is characterized by cardiac abnormalities, exercise intolerance, muscle weakness, severe fatigue, recurrent infections, and delayed growth. The foundation aims to raise awareness about the condition and fund research to find a cure. There are currently no FDA- or EMA-approved therapies for patients with Barth Syndrome. | Commercial Services |
